Tuesday, July 7, 2009 11:55 AM, CDT
I just got off the phone (11:55am CST) with the OR and she is doing very well. The next hour is crucial as they will try and take her off the bypass machine and check her bleeding to see if she will have to have her chest left open or it will get to be closed back up.
We were told that it is very likely she has the Turner syndrome. If all goes well with the surgery then there is a good likelihood that I will still have to be here with her for possibly several weeks to get her to learn how to eat. Babies with Turner syndrome have a tendency to have extra fluid buildup around the lungs and also have a harder time eating, resulting in a feeding tube for some time. Please pray that all goes smoothly. There is still a wait and see period to know whether or not this surgery will correct her problem and be the only surgery she will have to have. If not, we will have to evaluate with the surgeon as to whether or not to attempt the 3 step surgery. It appears to be the consensus that the doctors agree that babies with Turner Syndrome do not fair well with those surgeries and we will have to make a decision as to whether or not attempt it or just love on her for the time we have her with us. As always, we cherish your prayers!!
We were told that it is very likely she has the Turner syndrome. If all goes well with the surgery then there is a good likelihood that I will still have to be here with her for possibly several weeks to get her to learn how to eat. Babies with Turner syndrome have a tendency to have extra fluid buildup around the lungs and also have a harder time eating, resulting in a feeding tube for some time. Please pray that all goes smoothly. There is still a wait and see period to know whether or not this surgery will correct her problem and be the only surgery she will have to have. If not, we will have to evaluate with the surgeon as to whether or not to attempt the 3 step surgery. It appears to be the consensus that the doctors agree that babies with Turner Syndrome do not fair well with those surgeries and we will have to make a decision as to whether or not attempt it or just love on her for the time we have her with us. As always, we cherish your prayers!!
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