October 8, 2009

Thursday, October 8, 2009 7:56 AM, EDT

We had a full morning of appointments yesterday. Geneva started off the day with her cardiologist, whom we both adore. She hasn't been too fussy at any of the appointments except when Miss April checks her blood pressure. It appears as though her pleural effusion is gone, praise the Lord! Her left ventricle looks great, arch that was repaired looks good and there doesn't appear to be a bunch of scar tissue. She is still at the end of the bell shaped curve for the size of her mitral and aortic valve. I try to comfort myself and remember that somebody has to be at the end of that curve but I would really feel much better if it wasn't Geneva. The Turner Syndrome would complicate another surgery so much and we are asking for prayer that the Lord would heal those valves and they would grow with her greatly. And also that we would have peace with her condition, even if those valves don't grow. Unless she has any problems arise, our next cardiology appointment won't be until December! Ack! That is a little scary but I know Dr. Bremer will work us in if we have concerns and we trust her. She has always made it clear to check in with her if we needed which is so reassuring.

After cardiology, we headed over to neurology. That appointment went well also. After further reviewing the last EEG, her neurologist stated he was comfortable taking her off her meds and keeping an eye on her. Time will tell if there was permanent damage caused from the first seizures and if she will have more. Sometimes they start off subtle so we are praying she doesn't have any more but we will notice them if she does. She is definitely a little talker like her mother. :-) She just coos and babbles all the time now. She seems to be so very alert that I really don't believe she has suffered permanent damage. Unless we have any concerns, her next appointment with neurology won't be until April!

We have two more doctors to meet, endocrinology and her genetisist. I'm going to switch gears a bit over the next week and research a bit more about Turner Syndrome and try to think of what questions we might have. Interestingly enough, Geneva apparently still doesn't know she is supposed to be little. She just turned 3 months old and she is over 11 lbs and 23 1/2"! Considering all she's been through, I would say she is doing exceptionally well!

Thank you all so much for your love and support and kind words and prayers! Please continue to pray for Geneva and her valves and that the Lord will use her to bring glory and honor to Him.

Love,
Stephanie